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Fund Discovery Research

Tips for Success

  • Check with other group leaders who have run successful fundraising programs, grant programs, or formed strategic partnerships early in the discovery phase of therapy development. 
  • Search for research funding that may be available through special programs in your state.
  • Think  outside the box, network, and stay alert for emerging innovative companies focused on rare disease research or branches of large philanthropic organizations newly supporting the development of therapies for rare diseases. 
  • Persistence is key. Successfully finding funding can rely on:
    • Timing 
    • Positioning
    • Luck

Resources

Funding Research
Strategies for Effective Fundraising Global Genes (link)
Rare Toolkit: Finding Your Fundraising Strategy Global Genes (link)
Rare Toolkit: Five Essential Tips and Tools for Effective Fundraising Global Genes (link)
Fundraising National Organization for Rare Disorders (NORD) (link)
NORD Research Grant Program Funding National Organization for Rare Disorders (NORD) (link)
GARD Guide for Researchers: Finding Funding Opportunities Genetics and Rare Diseases Information Center (GARD) (link)
NORD Additional Funding National Organization for Rare Disorders (NORD) (link)
CF Foundation Venture Philanthropy Model Cystic Fibrosis (CF) Foundation (link)
Milken Institute Center for Strategic Philanthropy Milken Institute (link)
Nonprofits: A Growing Force in Drug Development Milken Institute (link)
Center for Strategic Philanthropy Newsletter Milken Institute (link)
FasterCures Toolkit Foundation-University Relationship Milken Institute FasterCures (link)
CureAccelerator FAQs Repurposing Research CureAccelerator (link)
From Molecules to Medicine How Patients Can Share Their Voices Throughout the Drug Development Process Section 4 Global Genes (link)
Federal Funding Opportunities
NIH Exploratory/Developmental Research Grant Award (R21) National Institutes of Health (NIH) (link)
Grants and Funding Application Due Dates National Institutes of Health (NIH) (link)
R21 Contacts and Special Interests National Institutes of Health (NIH) (link)
Find Funding: NIH Guide for Grants and Contracts National Institutes of Health (NIH) (link)
SBIR|STTR America Seed Fund National Institutes of Health (NIH) (link)
HHS SBIR/STTR Agency Contact Information National Institutes of Health (NIH) (link)
Parent Announcements (For Unsolicited or Investigator-Initiated Applications) National Institutes of Health (NIH) (link)
NIH Types of Research Grants National Institutes of Health (NIH) (link)
NCATS Funding and Notices National Center for Advancing Translational Sciences (NCATS) (link)
NIH Tips for Applicants National Institutes of Health (NIH) (link)
NIH Grants YouTube Page National Institutes of Health (NIH) (link)
NIH Grants Process Overview National Institutes of Health (NIH) (link)
OOPD Pediatric Device Consortia Grants U. S. Food and Drug Administration (FDA) (link)
Information on the Orphan Products Natural History Grants Program U. S. Food and Drug Administration (FDA) (link)