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Fund Discovery Research

Overview

Patient groups often choose to raise money to support research or seek other funding sources from the government or larger nonprofits. Some groups form their own grant program, where researchers submit a proposal and a scientific review committee recommends which projects to fund. Another option is to team up with other organizations that have overlapping interests to support mutually beneficial projects.

Resources

Funding Research
Strategies for Effective Fundraising Global Genes (link)
Rare Toolkit: Finding Your Fundraising Strategy Global Genes (link)
Rare Toolkit: Five Essential Tips and Tools for Effective Fundraising Global Genes (link)
Fundraising National Organization for Rare Disorders (NORD) (link)
NORD Research Grant Program Funding National Organization for Rare Disorders (NORD) (link)
GARD Guide for Researchers: Finding Funding Opportunities Genetics and Rare Diseases Information Center (GARD) (link)
NORD Additional Funding National Organization for Rare Disorders (NORD) (link)
CF Foundation Venture Philanthropy Model Cystic Fibrosis (CF) Foundation (link)
Milken Institute Center for Strategic Philanthropy Milken Institute (link)
Nonprofits: A Growing Force in Drug Development Milken Institute (link)
Center for Strategic Philanthropy Newsletter Milken Institute (link)
FasterCures Toolkit Foundation-University Relationship Milken Institute FasterCures (link)
CureAccelerator FAQs Repurposing Research CureAccelerator (link)
From Molecules to Medicine How Patients Can Share Their Voices Throughout the Drug Development Process Section 4 Global Genes (link)
Federal Funding Opportunities
NIH Exploratory/Developmental Research Grant Award (R21) National Institutes of Health (NIH) (link)
Grants and Funding Application Due Dates National Institutes of Health (NIH) (link)
R21 Contacts and Special Interests National Institutes of Health (NIH) (link)
Find Funding: NIH Guide for Grants and Contracts National Institutes of Health (NIH) (link)
SBIR|STTR America Seed Fund National Institutes of Health (NIH) (link)
HHS SBIR/STTR Agency Contact Information National Institutes of Health (NIH) (link)
Parent Announcements (For Unsolicited or Investigator-Initiated Applications) National Institutes of Health (NIH) (link)
NIH Types of Research Grants National Institutes of Health (NIH) (link)
NCATS Funding and Notices National Center for Advancing Translational Sciences (NCATS) (link)
NIH Tips for Applicants National Institutes of Health (NIH) (link)
NIH Grants YouTube Page National Institutes of Health (NIH) (link)
NIH Grants Process Overview National Institutes of Health (NIH) (link)
OOPD Pediatric Device Consortia Grants U. S. Food and Drug Administration (FDA) (link)
Information on the Orphan Products Natural History Grants Program U. S. Food and Drug Administration (FDA) (link)