Develop Programs To Speed Diagnosis
Resources
Newborn Screening
Advisory Committee on Heritable Disorders in Newborn and Children
U.S. Health Resources & Services Administration (HRSA) (link)
Recommended Uniform Screening Panel (RUSP)
U.S. Health Resources & Services Administration (HRSA) (link)
Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN
Newborn Screening Translational Research Network (NBSTRN) (link)
CDC Newborn Screening Portal
Centers for Disease Control and Prevention (CDC) (link)
Baby's First Test Public Square
Baby's First Test (link)
Tips for Success
National Coordinating Center for the Regional Genetics Networks About Us
National Coordinating Center for the Regional Genetics Networks (link)
Genomics Revolution: Reliability and Access
Global Genes (link)
PCORI Funding Informational Presentation
Global Genes (link)
Patient-Centered Outcomes Research Institute (PCORI) About Us
Patient-Centered Outcomes Research Institute (PCORI) (link)