Develop Programs To Speed Diagnosis
Resources
Resources
Advisory Committee on Heritable Disorders in Newborn and Children
U.S. Health Resources & Services Administration (HRSA) (link)
Recommended Uniform Screening Panel (RUSP)
U.S. Health Resources & Services Administration (HRSA) (link)
CDC Newborn Screening Portal
Centers for Disease Control and Prevention (CDC) (link)
Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN
Newborn Screening Translational Research Network (NBSTRN) (link)
Baby's First Test Public Square
Genetic Alliance (link)
National Coordinating Center for the Regional Genetics Networks About Us
National Coordinating Center for the Regional Genetics Networks (link)
Genomics Revolution: Reliability and Access
Global Genes (link)
PCORI Informational Presentation Video
Global Genes (link)
Patient-Centered Outcomes Research Institute (PCORI) About Us
Patient-Centered Outcomes Research Institute (PCORI) (link)