Support Clinical Trials
Patients and their families often need help learning about the purpose of clinical trials, as well as how to find and evaluate studies that are enrolling participants. Your patient group can help identify patients who may be eligible to participate in clinical trials when a clinical trial holds promise of an effective, safe new treatment.
Educating Your Disease Community
How to Get Involved in Research Genetic and Rare Diseases Information Center (GARD) (link)
Clinical Trials: What Patients Need to Know U. S. Food and Drug Administration (FDA) (link)
From Molecules to Medicine: Clinical Research Global Genes (link)
ClinicalTrials.gov National Library of Medicine (NLM) (link)
Five Principles: Returning Genetic Testing Results to Research Participants 2014 Published Article