Support Clinical Trials
Overview
Patients and their families often need help learning about the purpose of clinical trials, as well as how to find and evaluate studies that are enrolling participants. Your patient group can help identify patients who may be eligible to participate in clinical trials when a clinical trial holds promise of an effective, safe new treatment.
Resources
Educating Your Disease Community
Clinical Trials: What Patients Need to Know
U. S. Food and Drug Administration (FDA) (link)
From Molecules to Medicine: Clinical Research
Global Genes (link)
ClinicalTrials.gov
National Library of Medicine (NLM) (link)
Five Principles: Returning Genetic Testing Results to Research Participants
2014 Published Article