Demographic data« Back to Glossary Index
Demographic data are aspects of individuals or groups of participants in a study or registry, including basic descriptive information like age (date of birth), sex, race, and ethnicity. Other examples of demographic data that may be relevant to a patient registry, survey, or study include disease diagnosis, family history of disease, income level, employment, location, and level of education.
United States Core Data for Interoperability
Rare Diseases Registry Program (RaDaR): Decide on Demographic Questions