Data
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Data are a collection of facts, including observations and measurements. Registries and clinical studies may collect both quantitative and qualitative data about a participant or patient and sometimes their caregivers.

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UC San Diego Altman Clinical and Translational Research Institute: Glossary of Clinical Research Terms
NCImetathesaurus
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Rare Diseases Registry Program (RaDaR): Understand What Data Is
University of South Florida Libraries: Research Data and DataSet

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