Demographic data
« Back to Glossary IndexDemographic data are aspects of individuals or groups of participants in a study or registry, including basic descriptive information like age (date of birth), sex, race, and ethnicity. Other examples of demographic data that may be relevant to a patient registry, survey, or study include disease diagnosis, family history of disease, income level, employment, location, and level of education.
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Rare Diseases Registry Program (RaDaR): Decide on Demographic Questions