Facilitate Scientific Collaborations

Overview

Therapy development, including translational research, is a team sport. Determining areas where your patient group can support and drive research efforts will help you become an effective part of the team. Organizing virtual and in-person meetings between academic researchers and  your disease community can foster collaboration, maintain productive communication, and fuel interest in research. Meetings can promote an understanding of which therapy/treatments are currently within reach and which may be longer term goals. Special programs and meetings with the specific Institutes and Centers (ICs) of the National Institutes of Health (NIH) and the U.S. Food and Drug Administration (FDA) may increase collaboration.

Resources

Organize In-Person Scientific Meetings
List of Registries National Institutes of Health Clinical Center (link)
NIH Support for Scientific Conferences (R13 and U13) National Institutes of Health (NIH) (link)
FAQs about R13 grants National Institutes of Health (NIH) (link)
NIH Programs Supporting Collaboration
Office of Advocacy Relations National Cancer Institute (NCI) (link)
Patient/Community Engagement & Health Information National Center for Advancing Translational Sciences (NCATS) (link)
Work with NCATS National Center for Advancing Translational Sciences (NCATS) (link)
Rare Disease Clinical Research Network (RDCRN) National Center for Advancing Translational Sciences (NCATS) (link)
RDCRN Funding Information National Center for Advancing Translational Sciences (NCATS) (link)
RDCRN Conference on Clinical Research for Rare Diseases (CCRRD) National Center for Advancing Translational Sciences (NCATS) (link)
FDA Critical Path Innovation Meeting
Cooperative Research and Development Agreement (CRADAs) U. S. Food and Drug Administration (FDA) (link)
FDA Critical Path Innovation Meetings U. S. Food and Drug Administration (FDA) (link)
Video on the Critical Path Innovation Meeting (CPIM) Program U. S. Food and Drug Administration (FDA) (link)
Other FDA Meeting Opportunities
Patients Ask FDA U. S. Food and Drug Administration (FDA) (link)
Patient Listening Sessions U. S. Food and Drug Administration (FDA) (link)