Develop Programs To Speed Diagnosis

Resources

Advisory Committee on Heritable Disorders in Newborn and Children U.S. Health Resources & Services Administration (HRSA) (link)
Recommended Uniform Screening Panel (RUSP) U.S. Health Resources & Services Administration (HRSA) (link)
CDC Newborn Screening Portal Centers for Disease Control and Prevention (CDC) (link)
Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN Newborn Screening Translational Research Network (NBSTRN) (link)
National Coordinating Center for the Regional Genetics Networks About Us National Coordinating Center for the Regional Genetics Networks (link)
Patient-Centered Outcomes Research Institute (PCORI) About Us Patient-Centered Outcomes Research Institute (PCORI) (link)