Build Relationships With Key Partners

Resources

PubMed National Library of Medicine (NLM) (link)
GeneReviews National Library of Medicine (NLM) (link)
NORD Rare Disease Information National Organization for Rare Disorders (NORD) (link)
UpToDate Wolters Kluwer (link)
ClinicalTrials.gov National Library of Medicine (NLM) (link)
Find A Genetic Counselor National Society of Genetic Counselors (NSGC) (link)
Find A Genetics Clinic American Medical College of Genetics and Genomics (AMCG) (link)
Rare Diseases Clinical Research Network (RDCRN) National Center for Advancing Translational Sciences (NCATS) (link)
For Patients U.S. Food and Drug Administration (FDA) (link)
Learn About FDA Patient Engagement U.S. Food and Drug Administration (FDA) (link)
Developing Products for Rare Diseases & Conditions U.S. Food and Drug Administration (FDA) (link)
FDA Patient Affairs U.S. Food and Drug Administration (FDA) (link)
Working with Regulators: A Focus on the FDA Cancer Policy Institute at the Cancer Support Community (link)
List of NIH Institutes, Centers, and Offices National Institutes of Health (NIH) (link)
Find NIH Clinical Center Trials National Institutes of Health (NIH) (link)
NCATS Patient/Community Engagement & Health Information National Center for Advancing Translational Sciences (NCATS) (link)
Effective Engagement with Patient Groups Around Clinical Trials Clinical Trials Transformation Initiative (CTTI) (link)
Foundation-Company Partnerships Toolkits FasterCures The Research Acceleration and Innovation Network (TRAIN) (link)
An Essential Partnership: A Guide for Charities Working with Industry Association of Medical Research Charities (AMRC) (link)
Best Practices for Effective Patient Group Engagement Clinical Trials Transformation Initiative (CTTI) (link)